Dysautonomia (autonomic dysfunction) is a broad term that describes any disease or malfunction of the autonomic nervous system. This includes Postural Orthostatic Tachycardia Syndrome (POTS), Vasovagal Syncope, Mitral Valve Prolapse Dysautonomia, Pure Autonomic Failure, Neurocardiogenic Syncope (NCS), Neurally Mediated Hypotension (NMH), autonomic instability and a number of lesser-known disorders such as Cerebral Salt-wasting Syndrome. Dysautonomia is associated with Lyme Disease, primary biliary cirrhosis, Multiple System Atrophy (Shy-Drager Syndrome),Ehlers-Danlos Syndrome, and Marfan Syndrome for reasons that are not fully understood.
TDC provides information and support for several types of Dysautonomia including: Autonomic Dysreflexia, POTS, NCS, Multiple System Atrophy, Pure Autonomic Failure and Dysautonomia related conditions such as EDS and Small Fiber Peripheral Neuropathy. Follow the links in the drop down menus to learn more about Dysautonomia conditions, causes, symptoms, diagnosis, treatment, prognosis and more.
TDC also provides a great facebook group where our members can discuss a wide variety of topics regarding Dysautonomia conditions, disability, diet, exercise, everyday living, helpful home remedies and much more! Wondering about the new home page? Where have the videos, announcements and news posts gone? Simply click on “TDC Content Feed” and you’ll find what you’re looking for!
2013 Dysautonomia Patient Conference & Lobby Day
Who’s coming to the 2013 Dysautonomia Patient Conference (July 6th-8th in DC)? Road trip! Confirmed speakers so far include Dr. Peter Rowe from Johns Hopkins, Dr. Satish Raj from Vanderbilt, Dr. Kamal Chemali formerly of Cleveland Clinic and now at Sentara Neurology, Dr. Svetlana Blitshteyn from SUNY Buffalo, Dr. Hasan Abdallah from The Children’s Heart Institute, Dr. Pradeep Chopra from Brown University, and Keynote Speaker, Susannah Cahalan. Ms. Cahalan is the a NY Times Bestselling author of Brain on Fire, a NY Post reporter, and she became an outstanding patient advocate after she surviving her own battle with anti-NDMA receptor encephalitis, a rare and deadly brain disorder known to cause autonomic dysfunction in 70% of its victims, most of whom are young women. Additional speakers will be added soon. You can learn more about the conference on the Dysautonomia International website: www.dysautonomiainternational.org/2013conference