This is a modified version of the physician list from dinet.org and all credit for the list goes to the staff at DINET. It is posted here as another resource to help Dysautonomia patients find a physician.
Disclaimer: This list is posted only to serve as a guide for finding a physician who specializes in POTS/Dysautonomia. Patient experience and results will vary by physician and patient case. We cannot be held responsible for any incident that may arise from consulting a physician found on this list and urge you to use caution when selecting a physician or starting any type of treatment plan.
| AUSTRALIA | |
| Professor Murray Esler Heart Centre Alfred Hospital Commercial Road Prahran Melbourne Victoria 3181 61 3 9276 3263 Autonomic LaboratoryComments submitted by a patient:He is a kind and Clever man who will put you immediately at ease,which for a pots patient is quite a relief! |
|
| Dr Chris O’Callaghan 455 Upper Heidelberg Rd Heidelberg Victoria 3084 (03) 9496 5197Comments submitted by a patient:Dr Chris O’Callaghan is a Clinical Pharmacologist who sees new patients in his private practice and he also runs the Blood Pressure Clinic at Austin Health which specializes in diseases of the autonomic system including POTS, chronic fatigue syndrome and autonomic neuropathy. |
|
| Dr Libby Anderson Suite 1, Level 1, The National Capital Private Hospital Corner of Gilmore Crescent and Hospital Road GARRAN Australian Capital Territory 2605 Australia (02) 6222 6613Comments submitted by a patient:I found her smart and personable. She was able to recognise dysautonomia and make a diagnosis. |
|
| AUSTRIA | |
| Dr. Robert Winker Division of Occupational Medicine University of Vienna Wahringer Gurtel 18-20, Vienna 1090 01-40400-4747 Autonomic Laboratory Idiopathic Orthostatic Intolerance (POTS) & NCS May refer to Neurology Dept. of the University of Vienna Treats adults |
|
| CANADA | |
| Dr. Jean Cusson Unite D’investigation Non-Invasive Hospital Charles LeMoyne 3120 boul. Taschereau Greenfield Park, Que. J4V 2H1 450-466-5000 x3106 POTS (Syndrome de tachycardie Posturale), NCS (Syncope Neurocardiogenique), PAF (Bradbury Eggleston)/Secondary Autonomic Failure, MSA (Shy Drager), Subacute Pandysautonomia Autonomic Laboratory Treats adults |
|
| Dr. Ronald Schondorf Neurology SMBD Jewish General Hospital 3755 chemin de la Cote Ste Catherine Montreal, QC H3T 1E2 514-340-8222 ext.2399 Will treat children |
|
| Dr. Maxime Lamarre Cliche Institut de Recherches Cliniques de Montreal 110, Avenue des Pins Quest Montreal (Quebec) Canada H2W 1R7 514-987-5600 Autonomic Laboratory POTS, NCS, PAF/Secondary Autonomic Failure, MSA Will treat children 13 years and older |
|
| Carlos A. Morillo, MD, FRCPC, FACC & Juan C. Guzman, MD Autonomic Disorders Laboratory – Syncope Unit Arrhythmia Service, Cardiology Division - Department of Medicine, Faculty of Health Sciences, McMaster University Health Sciences Centre – Room 3E25-D 1200 Main St. W. Hamilton, Ontario, Canada, L8N3Z5 905-521-2100 Ext: 75616 Autonomic Laboratory Will treat children 13 years and older |
|
| DOMINICAN REPUBLIC | |
| Dr. David Hernandez Clinica Dr. Bonilla Calle Independencia 124 Santiago Republica Dominicana 809-247-4177 POTS, Neurally Mediated Syncope (NCS), PAF/Secondary Autonomia Failure Autonomic Laboratory |
|
| GERMANY | |
| Dr. Carl-Albrecht Haensch Department of Neurology, Univ. Witten/Herdecke Klinikum Wuppertal Heusnerstr 40 NRW D-42277 Germany 49-202-896-2645 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Diabetic Autonomic Disorders, Autonomic Dysfunction in Intensive Care |
|
| Dr. Max Hilz Department of Neurology University of Erlangen-Nuremberg Schwabachanlage 6 D-91054 Erlangen POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Familial Dysautonomia, Diabetic Autonomic Neuropathy Autonomic Laboratory |
|
| ISRAEL | |
| J. Racanati Autonomic Dysfunction Center Rambam Medical Center Bat-Galim, 31096 Haifa, Isreal 972-4-854-2594 x2467 Autonomic Laboratory |
|
| ITALY | |
| Dr. Paolo Alboni Division of Cardiology Ospedale Civile, 44042 Cento (FE) Autonomic Laboratory |
|
| Dr. Raffaello Furlan Unita’ Sincopi E Disturbi Della Postura Medicina 2, Ospedale “L. Sacco” Via G. B. Grassi, 74 20157 Milan Italy 39 02 39042752 Chronic Orthostatic Intolerance (POTS), NCS, PAF/Secondary Autonomic Failure, MSA, Fibromyalgia Autonomic Laboratory |
|
| Prof. Alberto Albanese Istituto Nazionale Neurologico Via G. Celoria, 11 20133 Milano Italy 39 02 2394539 Paf/Secondary Autonomic Failure, MSA, Parkinsonian Syndromes Autonomic Laboratory Will treat children |
|
| Dr. Pietro Cortelli Clinica Neurologica Via Ugo Foscolo, 7 40123 Bologna Italy 39-051-209-2929 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Associated Sleep Disorders Autonomic Laboratory Does not treat children |
|
| JAPAN | |
| Department of Cardiovascular Wakayama Medical University Hospital 811-1,Kimiidera,Wakayama City, Wakayama 641-8509, Japan +81-73-447-2300 NMS, OH |
|
| Dr. Haruhiko Abe The 2nd Department of Internal Medicine University of Occupational and Environmental Health, Japan School of Medicine Yahatanishi-Ku, Kitakyushu, 807-8555 81-93-603-1611 x2432 POTS & NCS Autonomic Laboratory |
|
| Dr. Masataka Sumiyoshi Division of Cardiology Izu-Nagaoka Hospital, 1129 Nagaoka, Izu-Nagaoka-cho, Takata-Gun, Shizuoka, 410-2295 Autonomic Laboratory |
|
| Dr. Hidetaka Tanaka Department of Pediatrics Osaka Medical College 2-7, Daigakucho, Takatsuki-shi Osaka, 569 +81 0726 83 1221 POTS, NCS & Instantaneous Orthostatic Hypotension Autonomic Laboratory |
|
| Dr. Kohei Kita Hirayama Memorial Kita Neurological Clinic 5-16-16 Shimomeguro, Meguro-ku Tokyo 153-0064 Japan 81-3-5768-1235 POTS, NCS, PAF/Secondary Autonomic Failure, MSA (Shy-Drager Syndrome, OPCA & SND), Acute Idiopathic Pandysautonomia, Idiopathic Generalized Hypohidrosis, Idiopathic Palmoplantar Hyperhidrosis, Ross’ Syndrome, Halequin Syndrome, Reflex Sympathetic Dystrophy Autonomic Laboratory |
|
| MEXICO | |
| Dr. Antonio G. Hermosillo & Andrei Kostine Medica Sur Puenta, de Piedra 150 Torre II Deopach 716 Mexico D.F. 14050 525-606-7864 POTS, NCS |
|
| NEW ZEALAND | |
| Dr. Ian Crozier, Dr. David Jardine & Dr. Melton Department of Cardiology Christchurch Hospital P.O. Box 4345 Christchurch 64-3-3641021 POTS, NCS, PAF/Secondary Autonomic Failure, MSA Autonomic Laboratory |
|
| NETHERLANDS | |
| Dr. J. W. M. Lenders Department of Internal Medicine St. Raboud Postbus 9101 6500 HB Nijmegen Nederland 31-24-3618819 NCS, PAF/Secondary Autonomic Failure, MSA Autonomic Laboratory |
|
| PORTUGAL | |
| Dr. Joao Freitas Centro De Estudos De Funcao Autonomica Hospital De Sao Joao Alameda Prof. Hernani Monteiro 4202-451 Porto 351-22-5512-100 x1461 POTS, NCS, PAF/Secondary Autonomic Failure Autonomic Laboratory Will treat children |
|
| UNITED KINGDOM | |
| Dr. Arnold Deering Consultant Physician Cheltenham General Hospital 08454 222046 08454 222092 Fax arnold.deering@glos.nhs.uk www.syncope.co.uk Will treat children |
|
| Prof. Christopher J. Mathias Neurovascular Medicine Unit (Pickering Unit) St. Mary’s Hospital/Imperial College of Science, Technology and Medicine. Praed Street London W1 1NY 44-207-886-1681 Treats adults |
|
| Dr John Bayliss FRCP Cardiology Dept, West Hertfordshire Hospitals Hemel Hempstead Hertfordshire HP2 4AD 01442 287087 Treats adultsDr. Bayliss is a Cardiologist with more than 20 years experience helping people with neurocardiogenic syncope and related problems such as POTS. |
|
| Dr. Karen A. McLeod Consultant in Pediatric Cardiology Department of Cardiology Royal Hospital for Sick Children Yorkhill NHS Trust Glasgow G3 8SI 44-141-201-0246 POTS, NCS Treats children exclusively |
|
| Dr. Julia Newton Falls and Syncope Clinic Royal Victoria Infirmary Newcastle upon-Tyne 0191 233 6161Comments submitted by a patient:Julia is an absolutely brilliant doctor. |
|
| Dr. Evans Medical Specialist Group St. Peter Port Guernsey gy4 6uu Channel Islands (01481) 238565 POTS, NCS, Autonomic Failure, MSA Very basic autonomic laboratory Geriatrics? Refers to St. Thomas Hospital London |
|
| UNITED STATES | |
| Alabama | |
| The Autonomic Disorders and Mitral Valve Prolapse Center 880 Montclair Rd. Suite 370 Birmingham, AL 35213 205-592-5765 POTS, NCS, PAF/Secondary Autonomic Failure, Other autonomic disorders Autonomic Laboratory Will treat children 15 years and older |
|
| California | |
| The UCLA Center for Autonomic Disorders B200, 300 Medical Plaza Los Angeles, California 90095 310-794-1195 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Migraine Syndrome, Chronic Fatigue Treats adultsComments submitted by a patient:I saw Dr. Frisca Yan-Go for my POTS. I was not comfortable with her approach. She totally disregarded EDS 3 as a contributor to POTS. She told me yoga, deep breathing, stretching, Centrum silver, Tums and V8 would be the base at calming down my autonomic nervous system. I had done a lot of holistic/eastern experiments long before I saw her, and it was insulting almost to have her lecture me on the basics of relaxation. She is obviously incredibly intelligent and does a lot of work with sleep disorders…but didn’t seem to listen to the patient. I was not comfortable enough to go back to see her. I would not recommend her for POTS if you live in California. |
|
| Karen J. Friday, M.D. Clinical Professor of Cardiovascular Medicine Cardiac Electrophysiology & Arrythmia Services Stanford University Medical Center 3A260 MC 5319 Stanford, CA 94305 650-723-7111 Treats adultsComments submitted by a patient:I found Dr. Friday to be an extremely kind, caring, thorough and knowledgeable professional in the area of cardiology and autonomic dysfunction. The appointment was 2 ¼ hours. During that time she went over my health history thoroughly, examined me, explained and educated me about autonomic dysfunction very thoroughly and then answered all of my questions very thoroughly. She said if I had any more questions I could call or e-mail (which would be faster). She made some recommendation for follow up with a gastroenterologist who also specialized in autonomic dysfunction along with some other changes. I would not hesitate to recommend her and rate her an A++ doctor. |
|
| David Cannom M.D. 1245 Wilshire Blvd. Suite 703 Los Angeles, CA 90017 213 977 0419Comments submitted by patients:He is with Los Angeles Cardiology. He is a world wide expert with dysautonomias that occur with the heart. **** Dr. Cannom’s specialty is not dysautonomia. Dysautonomia is never mentioned in a single one of his 41 articles on PubMed. The biography on his website doesn’t mention dysautonomia either. |
|
| Thampi K. John, M.D., FACC 30 River Park Place West Suite 330 Fresno, CA 93720 559-434-6232 |
|
| Aaron Banks, M.D 4050 San Dimas St. Suite B Bakersfield , California 93301-1205 United States 703-581-7316Comments submitted by a patient:He is amazingly knowledgeable and compassionate. He has helped me so much and is willing to put in the time to figure things out. He is well worth the drive for anyone on the West Coast! |
|
| Thomas Ahern, M.D. 10666 N. Torrey Pines Rd. SW 206 La Jolla, CA 92037 858-554-5039Comment submitted by a patient:He is a really amazing doctor who is willing to work with a patients and tailor the treatment plan. |
|
| Connecticut | |
| Frederick Nahm, M.D., Ph.D. 49 Lake Avenue Greenwich, CT 06830 203-661-9383 Autonomic Laboratory Treats adultsDr. Nahm is the Director of the Autonomic Function Laboratory at Greenwich Hospital. His interests are in dysautonomias, including small fiber neuropathies, syncope, and orthostatic hypotension. |
|
| Dr. Jeffrey Kluger 80 Seymour St., P.O. Box 5037 Hartford, CT 06102 860-545-2883 POTS, NCSComments submitted by a patient:He’s a phenomenal doctor. I saw three different cardiologists, and Dr. Kluger was the only one that really knew what was going on. Diet and fluid changes were tremendously helpful and drug adjustments were second nature to him. He is very knowledgeable. He changed my life. |
|
| Florida | |
| Dr. Fred Kusumoto Mayo Clinic Cardiology 7 East 4500 San Pablo Rd. Jacksonville, FL 32224 904-953-0323 Will treat children 16 years and olderComments submitted by a patient:It isn’t very often that I find myself leaving a doctor’s appointment feeling so happy, relieved, and overall impressed. Between Dr. Kusumoto and Dr. Thompson, it isn’t so bad being a Floridian with POTS anymore. |
|
| Dr. Charles Randy Thompson 8550 University Parkway Pensacola, FL 32514 850-969-7990 Mainly treats OI, POTS & NCS, although he does see patients with other autonomic conditions. Will treat adolescent children and olderAs a sufferer of OI/POTS, Dr. Thompson is a board certified specialist who had to give up Internal Medicine because of this condition. He returned to the University of Alabama School of Medicine to study under Dr. Cecil Coghlan. He has been back in practice on a limited basis for several years, treating only those with autonomic problems.Comments submitted by patients:Dr. Thompson diagnosed me with POTS back in January of this year. He is a very caring and compassionate Doctor. He has POTS himself, so he truly understands what I am going through. He is always available to help and does not hesitate when I need him. He has been so supportive throughout my ordeal. He is a truly great doctor and person. I feel that I am getting the best help possible. I thank God for Dr. Thompson and his help. **** I thank God everyday that Dr. Thompson was there when I got sick. I was being given so many diagnoses but no answers by my other doctors. I lost faith in the medical system and felt out there by myself. Dr. Thompson gained my trust back. His compassion and knowledge in the field and willingness to try new things puts him on the forefront in his field. His quest to get answers to things puzzling him or see what others are trying or investigating shows he cares. He was giving me fluids back in 2002, long before any literature was showing up on the web about hypovolemia. I highly recommend Dr. Randy Thompson, not only for anyone to go to but any awards out there for his compassion to help those of us suffering while he himself has this puzzling syndrome that takes on many forms. |
|
| Dr. Sinan Gursoy Dr. Stephan L Moore Naples Interventional Cardiac Electrophysiology LLC 311 Tamiami Trl N Ste 201 Naples, FL 34102 (239) 643-9977Comments submitted by patients:I was diagnosed by Dr. Gursoy as a hospital inpatient. He was called in after countless tests and several specialists(2 cardiologists, 3 ER doctors, a neurologist, a hospilist, and a GP) could not diagnose the problem. After reviewing all of my tests and symptoms Dr. Gursoy almost immediately diagnosed me with POTS. I followed up at his office where I was greeted by a polite office staff. Dr. Gursoy may not have a soft bedside manor, but he was through and explained POTS with a good understanding of all of the facets of the disorder. I liked his straightforwardness and was reassured that he had many patients with this condition. He said that POTS can be very difficult to live with and said that should I ever need to discuss anything not to hesitate to make an appointment to see him. Dr. Stephan Moore is also in this office and I have seen him once. He seems to have just as complete an understanding of the POTS patient as his senior partner, Dr. Sinan Gursoy. I would recommend both doctors in this practice. **** I felt Dr. Gursoy lacked tact and clear understanding of this disease and seemed to not want to deal with me after the diagnosis. |
|
| Georgia | |
| Dr. Julian Isakow/Cardiovascular Medicine 1700 Hospital South Drive, Suite 409 Austell, Georgia 30106-8159 770-732-9100Comments submitted by patients:So far I find Dr. Isakow the best POTS doctor in Atlanta or Georgia. He truly understands the disease and has a wonderful patient management style. Note that he has only treated a handful of POTS patients, but his organization itself is top notch in cardiology, so it is hopeful that over time he will develop more expertise. He is the head doctor of this top Atlanta firm and a nice guy. **** After a beta blocker and clonidine didn’t work, Dr. Isakow added a new drug, Valturna, which lowers blood pressure by reducing aldosterone and salt. This was the worst thing possible for my hopovolemia and hyponatremia. I am now VERY sick. |
|
| Hawaii | |
| Dr. Irwin Schatz 1356 Lusitana St. Honolulu, Hawaii 96813 808-586-7455 POTS, NCS, PAF/Secondary Autonomic Failure, MSA Treats adults |
|
| Illinois | |
| Dr. Janice Gilden Finch University of Health Sciences The Chicago Medical School 3333 Green Bay Road #111E North Chicago, IL 60064 847-688-1900 x84574 POTS, NCS, PAF/Secondary Autonomic Failure/MSA, Diabetes, Mitral Valve Prolapse Autonomic Laboratory Veterans are treated at this locationDr. Gilden can also be seen at:RHC/St. Mary of Nazareth Hospital Center 2233 W. Division Street #200 Chicago, IL 60622 312-770-3455Comments submitted by a patient: Dr. Gilden is warm, caring doctor who will consider many approaches to a complex syndrome. Highly recommended. |
|
| Dr. Barbara Deal Children’s Memorial Hospital 2300 Children’s Plaza Chicago, Illinois 60614 773-880-4553 Treats Children POTS,NCS,Syncope If you have questions, please contact Jennifer Winter: 773-880-3066Comments:Dr. Deal is a cardiologist with a special interest in dysautonomia. **** My visit with Dr. Deal was very disappointing. I would not recommend her. |
|
| Iowa | |
| Dr. William T. Talman Autonomic Nervous System Clinic, Dept. of Neurology University of Iowa Hospitals and Clinics 200 Hawkins Dr. 2100 RCP Iowa City, Iowa 52242 319-356-8750 or 319-356-2571 POTS, NCS, PAF, MSAComments submitted by a patient:Since Dr. Talman couldn’t see the symptoms during my appointment, he discounted the three doctors who had. |
|
| Kentucky | |
| Dr. Amir Zia 996 Wilkinson Trace, Suite A-7 Bowling Green, KY 42103 270-393-8418 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Autonomic Neuropathy (including diabetic) Autonomic Neuropathy Will treat children 16 years and older Comments submitted by patients:Dr. Zia specializes in Autonomic Disorders and did his fellowship at Harvard. He is my physician, and I know from personal experience he is wonderful! **** Dr. Zia has been my doctor for over two years now. I had symptoms for quite a while, but no one was able to come up with a diagnosis. After seeing Dr. Zia and receiving a diagnosis, I have a lot more peace. This is an extremely difficult disease to deal with and I had been told my some doctors that it was all in my head. Dr. Zia always reminds me that I am not crazy and not to let anyone tell me so. That this is a serious disease and I am trying to cope with it day by day. |
|
| Maryland | |
| Dr. Ramesh K. Khurana Hawthorne Office Park 10780 Hickory Ridge Road Columbia, MD 21044 410-997-3113 POTS (OI, OT), NCS, PAF/Secondary Autonomic Failure, MSA, Anhidrosis, Hyperhidrosis Autonomic Laboratory Treats adultsComments submitted by patients:Instead of the patient being able to pick a date of available appointments, you have to wait to get a call from the office with a possible date, often on very short notice, i.e. next day. I actually went for a year without being offered any dates at all. After more than two years of trying to get testing with only frustrating calls of next day appointments, I gave up with absolutely nothing to show for my time with him. **** We have had a different experience with Dr. Khurana’s office than the other person has reported. My daughter has been seeing him for 3 years, and we have never had a problem getting an appointment. Like other doctors, sometimes it is a month before you can see him, but we have always been able to make appointments by calling his office, or to schedule our next appointment while we are in his office. He has several different offices. Perhaps what the other person experienced was a problem with the scheduler in one of his offices. **** I have been a patient of Dr. Khurana for over 30 years. I am always able to make appointments fairly easily. He’s a very thorough and kind doctor. **** Dr. Khurana has been my physician for 15 years and I am so grateful that I was sent to him. He spends time with you and listens. As for getting appointments, I know he is booked far ahead for new patient and follow up appointments. This may have to do with the fact that he spends time with his patients and does not overbook. |
|
| Dr. Emmanuel Nsah Peninsula Regional Medical Center 400 Eastern Shore Drive Salisbury, MD 21804 410-749-8906 POTS, NCS, PAF/Secondary Autonomic Failure Will treat adolescents and olderComments submitted by a patient:Dr. Nsah is an electrophysiologist, and only sees patients with autonomic dysfunction (primarily POTS/NMH) or with heart rhythm abnormalities. As of March 2004 he is accepting new patients from the Baltimore/DC/Delmarva region. You can contact one of his POTS patients at oct02mom@yahoo.com if you wish. |
|
| Massachusetts | |
| Autonomic Disorders Center Department of Neurology Beth Israel Deaconess Medical Center 1 Deaconess Road Boston, MA 02215 617-632-8454 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Orthostatic Hypotension, Central & Peripheral Autonomic Neuropathy Autonomic Laboratory Treats adultsComments submitted by patients:I would not recommend the Beth Israel autonomic disorders center. **** It went very poorly, and I do not think I will ever get an answer from Beth Israel. |
|
| Anna Hohler, MD Boston University Medical Center Dept. of Neurology 715 Albany Street, C329 Boston, MA 02118 617-638-8456 Autonomic LaboratoryComments:Dr. Hohler treats dysautonomia, MSA and Parkinson’s disease with autonomic dysfunction. **** After almost 15 years and countless neuro consults, Dr. Hohler was the first to take me seriously. |
|
| Paul LeLorier Boston Medical Center 88 East Newton St. Boston, MA 02118-2393 (617) 638-8734 POTS, NCS Autonomic Laboratory |
|
| Peter Novak, MD, PhD Autonomic Center at University of Massachusetts Department of Neurology University Campus, 55 Lake Avenue North Worcester, MA 01655 POTS, Hyperhidrosis, Dysautonomia, MSA, Parkinson’s Disease with Autonomic Dysfunction Autonomic Laboratory Treats adults |
|
| Dr. Lawrence S. Rosenthal University of Massachusetts Medical Center 55 Lake Avenue Worchester, MA 01655 508-334-6194 NCSComments:Dr. Rosenthal is not a specialist, but he does perform tilt table testing and prescribe therapies for NCS. |
|
| Michigan | |
| Dr. Ching Man Northpointe Heart Center Berkley Main Office 27901 Woodward Avenue, Suite 300 Berkley, MI 48072-0921 Phone: 248-545-0070 Fax: 248-545-4850Comments submitted by a patient:I have been seeing Dr. Man for the past three years and he is absolutely wonderful. He takes his time with me and is very honest. |
|
| Dr. Sid Gilman Department of Neurology University of Michigan 300 North Ingalls 3D15 Ann Arbor, MI 48109 734-936-1808 or 734-936-9020 PAF/Secondary Autonomic Disorders, MSA Have plans to develop an autonomic laboratory Treats adultsComments submitted by a patient: I have POTS resulting from Chiari malformation and EDS. This was really the worst experience I’ve had with any physician. |
|
| Dr. Felix Rogers 2205 Riverside Drive Trenton, MI 48183 734-675-2220 POTS, NCS, PAF/Secondary Autonomic Failure, MSA Treats adultsComments submitted by a patient:Dr. Felix Rogers is a wonderful doctor!! He is the first doctor I have seen that didn’t rush me through the appointment. He sat down with me for almost an hour and was really listening to what I had to say. Anytime I have had a problem, he personally speaks to me on the phone. I have had a wonderful experience with him, and I will continue to see him! **** I was 36 weeks pregnant and in MI caring for a terminally ill family member. It became necessary for me to find an obstetrician who would be able to deliver and who understood POTS as I would not be able to return to my home state of Florida in time for my due date. I found Dr. Rogers on THIS website and cold called his office to see if they knew of any OB/GYN’s that had worked with a patient with my condition. I left a msg and Dr. Felix Rogers returned my call personally. He couldn’t recommend an OB/GYN but made several calls and emails on my behalf to find someone I could be comfortable delivering my baby with. He called me several times and spoke about my condition and the affect it would have on my delivery and also offered that if the doctor he found for me had any questions they could call him directly and he would assist. He spoke at length explaining POTS and the Obstetric Patient from a recent course at a symposium on the subject he had attended within the past month. He went above and beyond!!! ALL of this and I was never a patient of his, never paid him any money for his time, I was a complete stranger that he showed indescribable compassion for. If I lived in MI he WOULD be my doctor, and I would recommend him to others. He is an A+ in my book! |
|
| Minnesota | |
| Mayo Clinic Autonomic Neurology Subspecialty Group 200 First Street SW Rochester, MN 55905 507-284-1588 Autonomic Laboratory Treat adults |
|
| Mayo Clinic Pediatric Neurology Center 200 First Street SW Rochester, MN 55905 507-284-9974 Autonomic Laboratory Treats children exclusively |
|
| Dr. David Benditt Central Minnesota Heart Center at St. Cloud Hospital 1406 Sixth Avenue North St. Cloud, MN 56303 320-656-7020 800-448-3455 POTS & NCS (Neurally Mediated Syncope, Vasovagal Syncope, Carotid Sinus Syncope) Autonomic Laboratory Treats adults |
|
| Dr. Benditt, Dr. Scott Sakaguchi & Dr. Fei Lu Cardivascular Center Fairview University Medical Center University of Minnesota MMC508 516 Delaware Street SE Minneapolis, MN 55455 Dr. Benditt: 612-625-4401 Dr. Sakaguchi & Dr. Fei Lu: 612-625-3600 POTS & NCS Treats adults |
|
| Dr. Dorothy Kelly WMP Holyoke Medical Center 18 Hospital Drive Holyoke, MS 01041 Country: US 413-534-2802Comments:Dr. Kelly is both healthcare provider and researcher, diagnoses and treats various forms of autonomic dysfunction, and takes a whole-body approach to management of dysautonomia, including environmental and organizational factors to mediate the problems of living with dysautonomia. Previously associated with SW SIDS Research Center, Dr. Kelly researched breath-holding and defined involuntary breath-holding as related to autonomic dysfunction. She serves as Board Advisor to American SIDS – Autonomic Dysfunction Center, a 501(c)3 dedicated to education and reducing deaths and/or disabilities connected with autonomic dysfunction and of undiagnosed problems related to sudden death at all ages. |
|
| Nebraska | |
| Dr. Pariwat Thaisetthawatkul (Patients call him Dr. Thai) Dept. of Neurological Sciences 982045 Nebraska Medical Center Omaha, NE 68198-2045 402-559-8600 POTS PAF, MSA, Pareneoplastic and other autonomic failures. |
|
| New Hampshire | |
| Dr. Jeffery A. Cohen Section of Neurology Dartmouth-Hitchcock Clinic One Medical Center Drive Lebanon, NH 03756 603-650-8589 PAF/Secondary Autonomic Failure, MSA & Diabetic Autonomic Neuropathy Autonomic Laboratory |
|
| New Jersey | |
| Dr. Nicholas G. Tullo 741 Northfield Ave., Suite 205 West Orange, NJ 07052 973-467-1544 POTS, NCS, Inappropriate Sinus Tachycardia, Chronic Fatigue Syndrome |
|
| New York | |
| Julian M. Stewart Dept. of Pediatrics Munger Pavilion New York Medical College Valhalla, NY 10595 914-594-4370 Treats ChildrenInformation on Dr. Stewart’s current research study is available on our website at: http://www.dinet.org/studies.htm |
|
| Svetlana Blitshteyn, MD 835 Hopkins Road Williamsville, NY 14221 716-531-4598Dr. Blitshteyn specializes in autonomic disorders, headache medicine and general neurology. She is highly recommended. |
|
| Dr. Kiril Kiprovski Department of Neurosciences Hospital for Joint Diseases 301 E. 17th Street New York, NY 10003 212-598-2375 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Orthostatic Hypotension Autonomic Laboratory Treats adults |
|
| Dr. Ludmilla Bronfin 650 First Avenue., 7th Floor New York, New York 10016 212-532-6298 POTS & NCS Treats adultsComments submitted by a patient:Dr. Bronfin totally disregarded my diagnoses of both POTS and EDS . Overall I was very disappointed and felt completely misdiagnosed. |
|
| Dr. Max Hilz New York University Department of Neurology 550 First Ave. New York, NY 10016 212-686-7500 ext. 7755 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Familial Dysautonomia, Diabetic Autonomic Neuropathy Autonomic Laboratory Will treat children |
|
| Lindsey Lee Lair, MD 35 East 35 St. Suite 202 New York, NY 10016 917-991-1992Comments:Dr. Lindsey Lee Lair completed her fellowship in autonomic and peripheral nervous system disorders. |
|
| The Syncope Center at Columbia Presbyterian Medical Center Harkness Pavilion, Room 342 180 Fort Washington Avenue New York, NY 10032 212-305-9940 Treats adults |
|
| Louis H. Weimer Neurological Institute of New York 710 W. 168th Street New York, NY 10032 212-305-1330 Orthostatic Intolerance (POTS), PAF/ Secondary Autonomic Failure, Multiple System Atrophy Autonomic Laboratory Treats adultsDr. Weimer primarily performs testing. The Neurological Institute of New York has a large movement disorders group experienced with MSA, and there is also a syncope center that treats NCS (See:The Syncope Center at Columbia Presbyterian Medical Center). POTS/OI patients are considered on a case to case basis. |
|
| North Carolina | |
| Dr. Laura A. Black 10344 Park Road Ste 300 Charlotte, NC 28210 704-543-9692 Treats children 8 years and olderDr. Black sees patients with chronic fatigue syndrome/myalgic encephalopathy/fibromyalgia and related conditions. The clinic performs tilt table testing and cardiopulmonary exercise testing in the office and treats many patients with OI (POTS/SOTS & NMH) at the Hunter Hopkins Center. |
|
| Dr. Caroline Klein UNC Department of Neurology 3114 Bioinfomatics Building, Campus Box 7025 Chapel Hill, NC 27599 919-966-5522 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Autonomic NeuropathyComments submitted by a patient:Dr Klein has taken the TIME, no matter how long, to listen to my many health issues due to my POTS episodes. She has personally administered testing on me, and even consults with other doctors about my case. They also in turn have been informed BEFORE they meet with me and have been very supportive in my continued decline and possible advancement of Dysautonomia. Dr. Klein and her fellow team are patient, highly experienced, kind, listeners, and professional. I would highly recommend her to anyone who wants to FINALLY have a doctor who cares for more than a 15 minute chat. She will get to the bottom of the so many Dysautonomia issues you may be experiencing. |
|
| Dr. Ivor Hill Pediatric Digestive Health Clinic Baptist Hospital Wake Forest University Winston Salem, NC 27157 336-713-4500 Treats malabsorption Syndromes, Functional Gastrointestinal Disorders, Inflammatory Bowel Disease, Celiac Disease, Pancreatic Diseases, Diseases of the Intestines, Liver Disease, Nutritional Disorders.Comments submitted by a patient:My daughter had been suffering for 4 years. Within 10 minutes Dr. Hill guessed at the problem, and confirmed it with a tilt table test. She has been SIGNIFICANTLY improved in the last 6 months – attending school and living a fairly normal life. What a blessing! |
|
| Ohio | |
| Dr. Blair Grubb Medical University of Ohio 3000 Arlington Avenue Toledo, Ohio 43614 419-383-3925 Will treat childrenComments submitted by patients:I just wanted to say that Dr. Blair Grubb, MD in Ohio is the most informed and kindest doctor I’ve ever encountered in my lifetime. He always takes the time to listen intently to you and always tries to give you new ideas and new things to help you even if nothing has worked in the past. He doesn’t give up on you. He is very knowledgeable and skilled . His clinics often run behind schedule because he takes time with each and every one of his patients. He cares so much about each one of us. He once sent me the book “When Bad Things Happen to Good People”. It was after my first visit to see him, and I didn’t even know that he’d remember who I was. He is the best and nicest, kindest, smartest doctor ever and he knows an awful lot about dysautonamia and NCS and POTS. He’s written many articles and journals and books. Thank you for letting me tell you about Dr. Grubb. **** He is an EXTRAORDINARY physician– the brilliant, yet compassionate, doctor everyone wants. My 24-year-old daughter visited every cardiologist and electrophysiologist in our Colorado metro area. She tried every treatment and medication imaginable over a period of 8 years. There seemed to be no help for her. Though those doctors were also good, reputable physicians, in the end we were referred to Dr. Grubb. My daughter is now getting her life back on the treatment he prescribed on her very first visit. We think Dr. Grubb walks on water! **** Dr. Grubb can be hard to get in touch with. I had to wait over 6 weeks for him to call me back. |
|
| Ohio State University Medical Center Autonomic Reflex Laboratory Neurology Outpatient Clinic- EMG Laboratories, 1C 456 West Tenth Ave Ohio State University Medical Center Columbus, Ohio 43210 (614) 293-6767 Autonomic Laboratory Treats adults |
|
| Dr. Thomas Chelimsky University Hospitals of Cleveland 11100 Euclid Ave. Cleveland, OH 44106 216-844-3495 Autonomic Laboratory Will treat children 12 years and older |
|
| Dr. Gerald E. Grossman University Hospitals of Cleveland Department of Neurology 11100 Euclid Avenue Cleveland, OH 44106-5040 216-844-8925 Autonomic LaboratoryComments submitted by a patient:I went to Dr. Grossman for my diagnosis and my treatment. He is very good at treating this disease, and he also listens to what you have to say. He answers all your questions. I never felt like he was pushing me through the appointment. Very smart. |
|
| Dr. Barry DeRan 5705 Monclova Rd. Suite 204 Maumee, OH 43537 419-897-7611 POTS, NCS Treats adults |
|
| Dr. Fetnat Fouad-Tarazi Head Syncope Clinic, Dept. of Cardiovascular Medicine (F15) Cleveland Clinic 9500 Euclid Avenue, Cleveland, OH 44195 216-444-5828 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Other Autonomic Disorders Autonomic Laboratory Will treat childrenComments submitted by a patient:Dr. Fouad and her entire staff were knowledgeable, thorough, and respectful. She closely followed all testing and then made recommendations as she discussed results with staff members and me, the patient. It was impressive and a relief after I had a terrible experience at another institution that had a good reputation for evaluating dysautonomia patients. Things can change quickly at any institution, so I appreciate the value of this service. if you can afford it, go to Cleveland! Your health is worth it. **** Dr. Fouad is great on diagnosis but poor on treatment. |
|
| Jeffrey C. Maludy, MD FACC 4417 N. Holland-Sylvania Rd Suite 301 Toledo, OH 43623 419-842-1100 http://www.cardiologywellness.comComments:Adult NCS, POTS, Dysautonomia – AWARDS: America’s Top Cardiologist’s 2006 – People’s Choice Award 2008, 2009 – Aetna Axecl designated Cardiologist 2007-2009, 2009-2011 “Aexcel-designated doctors are high performers, in terms of clinical performance and efficiency, in their specialty areas.” TRAINING: Mayo Clinic & University of Michigan – WEBSITE: |
|
| David O. Martin, MD, MPH Cleveland Clinic, 9500 Euclid Ave/F15 Cleveland, OH 44195 216-445-4128Dr. Martin is a cardiac electrophysiologist at a major tertiary care referral center and sees a number of patients with POTS/dysautonomia who have been previously misdiagnosed or non-diagnosed (“it’s in your head”). |
|
| Dr. Mark O’connor Toledo Cardiology Consultants 2409 Cherry Street Toledo, OH 43608-2625 (419) 251-3700 |
|
| Dr. Monica Young 3900 Sunforest Court Suite 227 Toledo, OH, 43623 (419) 480-0700 |
|
| Oregon | |
| Emilia Arden, DO Northwest Cardiologists 9155 SW Barnes Rd. #431 Portland, OR 97225 503-292-4485Comments submitted by a patient:Dr. Arden looked at my legs and saw the pooling blood. She told me about POTS. She is treating others with POTS and she trained with Dr. Grubb. |
|
| Pennsylvania | |
| Michael W. Consevage Moffitt Heart and Vascular Group 1000 N. Front Street Wormleysburg, PA 17043 717-731-0101 POTS, NCS Treats ChildrenMichael W. Consevage can also be seen at two other Moffitt Heart and Vascular Group offices:Carlisle Office 977 Walnut Bottom Rd. Carlisle, PA 17013 717-243-6557& Chambersburg Office |
|
| Leonard Ganz 4815 Liberty Ave. Suite 336 Pittsburgh, PA 15224 412-681-5500 POTS & NCS – May refer elsewhere for treatment Will see childrenComment submitted by a patient:I thought I was going to a POTS expert and DR. Ganz is not doing anything my PCP couldn’t do for me. I was very disappointed. |
|
| Neurological Associates of Delaware Valley Crozer ACP – Suite 533 One Medical Center Boulevard Upland, PA 19013 610-874-1184 Autonomic Laboratory Treats adults |
|
| Tennessee | |
| Vanderbilt University Autonomic Dysfunction Center AA3228 MCN 1161 21st Avenue South Vanderbilt University Nashville TN 37232-2195 615-322-2318 Email: ADCResearch@Vanderbilt.edu http://www.mc.vanderbilt.edu/gcrc/adc Treats adults onlyThe Vanderbilt group has ongoing research studies attempting both to understand the physiology causing POTS and also to access novel therapies for POTS. Read more about Vanderbilt’s research on our website at: http://www.dinet.org/studies.htm |
|
| Texas | |
| Dr. Benjamin D. Levine, Professor of Medicine Institute for Exercise and Environmental Medicine Presbyterian Hospital at Dallas 7232 Greenville Ave. Dallas, Texas 75231 214-345-4626 Will treat children 15 years and olderDr. Levine is currently examining the mechanisms behind the remarkable gender specificity of POTS. Interested, newly diagnosed patients who live in the area can contact his office for further information.Dr. Gil I. Wolfe Department of Neurology UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd. Dallas, Texas 75235 214-648-9574 PAF, Autonomic Peripheral Neuropathies Autonomic Laboratory Treats adults |
|
| Dr. Amer Suleman The Heartbeat Clinic 7777 Forest Lane Suite A 236 Dallas, Texas 75230 972-566-4327 POTS, NCS Autonomic Laboratory Treats adults Dr. Suleman is an electrophysiologist with a special interest in dysautonomias. |
|
| Vermont | |
| Dr. Robert W. Hamill Department of Neurology Neurology Ambulatory Care Center East Pavilion Level 5 111 Coalchester Avenue Burlington, VT 05401 802-847-4589 POTS, NCS, PAF/Secondary Autonomic Failure, MSA Autonomic Laboratory Treats adults |
|
| Virginia | |
| Dr. Hasan Abdallah The Children’s Heart Institute 3301 Woodburn Road #104 Annandale, VA 22003 (703) 369-9090 Treats ChildrenClick here to view four other locationsComments submitted by patients:Dr. Abdallah is wonderful. His practice is almost entirely dedicated to dysautonomia. He sees patients up to the age of mid-twenties. **** Dr. Abdallah correctly diagnosed my son after many visits to other specialists. My son has both severe POTS and a mast cell disorder, which is very uncommon especially given his age (8). Dr. Abdallah uses not only testing, but his wealth of experience to get the diagnosis and treatment right. I’ve been to many other experts and traveled hours to see other doctors, but Dr. Abdallah was the only one who correctly diagnosed the mast cell disorder as the underlying cause for my son’s severe POTS. The medication helped almost immediately. If you need someone who is kind, thorough, and most importantly really, really good, see Dr. Abdallah. You will be very glad you did. |
|
| Washington, DC | |
| Dr. Alan Pocinki 2141 K St. N.W. Suite 606 Washington, DC 20037 202-223-2282 POTS & NCS Treats adultsPrimarily sees patients that have orthostatic intolerance as a feature of another syndrome, such as CFS, Ehlers-Danlos and related hypermobility syndromes. |
|
| Wisconsin | |
| Dr. Safwan Jaradeh and Dr. Alexandru Barboi Medical College of Wisconsin Department of Neurology 9200 W. Wisconsin Avenue Milwaukee, WI 53226 414-805-8710 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Small Fiber Neuropathy, GI/GU dysautonomia, Sweat Disorders Will treat childrenComments submitted by patients:Dr. Barboi has been an exceptional physician during the treatment of my personal autonomic condition. He is open-minded to trying a variety of medications as well as alternative activities such as acupuncture and massage therapy. He is truly dedicated to his work, making you feel better, and genuinely cares about each individual who walks through the door. I have never been under the care of a more competent and kind physician as he. He is a diamond in the rough. **** Dr Jaradeh is sharp. He diagnosed both my 18 year-old son and I with dysautonomia in 2008. He has a connection with my son that is exemplary, listening to him patiently, asking the right questions, commiserating with him, and remembering the little things that makes him feel special. We live abroad and he has gone out of his way to accommodate our situation with a ever-present smile on his face. We have our lives back, thanks to Dr Jaradeh. |
|
| Dr. Ryan L. Cooley Heart Care Associates LLC 2801 W. Kinnickinnic River Parkway #777 Milwaukee, WI 53215 414-649-3390 POTS, NCS, PAF/Secondary Autonomic Failure/ Inappropriate ST Will treat adolescents and olderComments submitted by a caregiver:I took my son to see Dr. Cooley from your Wisconsin list. He was wonderful. He didn’t talk down to my son, he listened patiently, and he even took the time to check for any news or updates online before prescribing a medication. |
|
| Dr. Hiner Medical College of Wisconsin Department of Neurology 9200 West Wisconsin Ave. 1000 N. Oak Avenue Milwaukee, WI 53226 414-805-8710 POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Diabetic Autonomic Neuropathy Autonomic Laboratory Treats adults |
|
